Muscular Dystrophy

What is Muscular Dystrophy?

Muscular dystrophy is a group of inherited muscle diseases characterised by progressive weakness and wasting (atrophy) of muscles. It is caused by changes in a gene that affects the production of certain proteins needed for normal muscle function. It is a rare disorder, however it can affect people of any age and gender. Symptoms can range from mild to severe, depending on the type of muscular dystrophy.

Types of Muscular Dystrophy

The types of muscular dystrophy vary in severity, from Duchenne (the most common form) to Becker and Emery-Dreifuss forms, which are less severe with symptoms appearing much later in life. Other types include limb-girdle, congenital, facioscapulohumeral (FSHD), myotonic, oculopharyngeal and distal dystrophies.

Difficulties Faced by Patients with Muscular Dystrophy

Patients with muscular dystrophy may experience a variety of difficulties due to their condition. These may include: mobility issues; weakened heart or respiratory systems; difficulty chewing or swallowing; joint contractures; delayed development; learning disabilities; chronic fatigue and muscle pain; respiratory problems such as aspiration pneumonia; depression or anxiety; sleep disturbances; as well as other medical complications from the disorder itself.

Aeon Nursing’s Approach to Muscular Dystrophy

At Aeon Nursing we understand the complex needs associated with muscular dystrophy, which is why we provide comprehensive care services tailored to the individual’s specific needs.

Our approach focuses on providing round the clock care for our clients to ensure safety and comfort at all times. We specialise in assisting with delegated nursing tasks such as medication management, wound dressing and tube feeding administration, while also providing support with daily living activities including meal preparation/cooking, personal grooming/showering and recreational activities. Our team strives to maximise independence through goal oriented interventions which focus on maximising abilities while decreasing limitations caused by the disorder. We also recognize the importance of providing emotional support along with physical care and strive to engage families in decision making processes related to care plans through ongoing Family Conferences held each month at our facility