Huntington’s Disease

What is Huntington’s Disease?

Huntington’s disease (HD) is a rare, inherited disorder that causes the progressive deterioration of nerve cells in certain parts of the brain. It is classified as a neurodegenerative disorder, meaning it occurs when nerve cells die or are damaged due to genetic factors. HD affects individuals of all genders and ethnic backgrounds, though it is most commonly diagnosed in people between 35 and 44 years old. People with HD often experience cognitive difficulties, movement disorders, behavioural changes and psychiatric symptoms.

Difficulties Faced by Patients with Huntington’s Disease

Patients with HD can face a variety of challenges. Cognitive difficulties can range from mild memory loss to significant impairment in executive functioning and problem-solving. Movement disorders are characterized by uncontrolled movements such as jerking or writhing, muscle spasms and difficulty coordinating their movements (known as chorea). Behavioural changes may include aggression, irritability or apathy, while psychiatric symptoms could include depression and anxiety. Over time these symptoms can become more severe and result in disability or even death.

Aeon Nursing Approach to Huntington’s Disease 

At Aeon Nursing we believe in providing complex care services tailored to each patient’s needs. Our approach to HD focuses on managing the physical, emotional and psychological effects of the disorder through evidence-based care plans that involve medication management, physical therapy, emotional support and lifestyle counselling.

We also work closely with families to ensure they have access to support systems both inside and outside of our practice so they can better understand how to manage their loved one’s condition over time. Additionally, we provide educational resources so patients can learn more about their diagnosis and gain insight into how they can remain actively involved in managing their care alongside our team of experts.