Inclusion body myositis

What is Inclusion Body Myositis (IBM)?

Inclusion Body Myositis (IBM) is a rare, progressive muscle-weakening disorder that affects adults of all ages. It is an autoimmune disease, meaning the body’s immune system attacks healthy muscles, leading to inflammation and muscle weakness. IBM affects both men and women equally and most commonly begins between the ages of 40-60.

Difficulties Faced by Patients with IBM: 

Patients with IBM can experience a wide range of difficulties due to the impact of their condition on mobility, strength and daily activities. These difficulties include:

• Loss of strength in the limbs and trunk – making everyday tasks such as dressing, bathing and eating difficult for some patients.

• Difficulty swallowing – this makes eating solid foods or drinking from a cup difficult for many patients.

• Involuntary movements – some patients may have twitches or spasms in their arms or legs which can be painful or cause sleep disturbances.

• Respiratory complications – some patients may develop breathing problems due to weakened respiratory muscles, leading to difficulty breathing or even pneumonia in some cases.

• Pain – many patients suffer from pain due to muscle inflammation, as well as joint stiffness. This can make it difficult for them to move around comfortably or perform day-to-day activities without feeling discomfort.

Aeon Nursing Approach to Inclusion Body Myositis: 

At Aeon Nursing our team provides comprehensive care services tailored to each patient’s individual needs, allowing them to live life with greater comfort and independence despite their condition. Our approach focuses on providing emotional support as well as physical care so that patients feel supported throughout their journey with IBM. We also provide education about IBM so that patients are aware of the condition and know what steps they can take for self-care and symptom management. In terms of physical care, we focus on helping with daily activities such as dressing, bathing and eating, while maintaining safety at all times so that patients feel secure in our hands. We understand that managing IBM can be challenging but we strive to help our clients every step of the way by providing compassionate care backed by years of experience in caring for those living with chronic conditions such as IBM.